Below is the link to a mutual support group, NOTE: This page, this support group as
well as the support group I maintain is NOT supported YET by the IPIF!!
The IP Friends and Family Connection
Here are some other sites on Incontinentia Pigmenti. I hope you will visit them. Here is the address to NIPF (National
Incontinentia Pigmenti Foundation) NIPF 30 East 72nd Street Suite 16 New York, NY 10021 Phone:
212-452-1231 Fax: 212-452-1406 Email: nipf@pipeline.com
National Incontinentia Pigmenti Foundation
Above, is the site for the Incontinentia Pigmenti International
Foundation. It is a charitable foundation dedicated to research into causes and treatment of this disease...
*** NOTE *** They don't have a "working" support group for the USA.
This site, below, is for IP support groups and genetic resources.
IP Support
This site, below, is all about the dermatological viewpoint on IP.
A Skin Patient's World...
The four links below is to the University of Iowa. There are four slides of Incontinentia Pigmenti, from the dermatological
standpoint. They all are pictures of young babies.
IP slide 1
IP slide 2
IP slide 3
IP slide 4
May 28, 2003
Here are some additional IP links that I found recently, within the month.
If you have troubles with any links, be sure to let me know so I can correct the problem immediately!
Thanks!
Another IP link for you...
This is a site that gives some details to IP, (DMOZ.ORG)
This comes from Healthlink.edu...
Below are 2 great links... they added Anna's website to their
site & asked to be linked back to... here is my courtesy. Thank you, be sure to visit them! :)
BRAND NEW LINK! They added Anna's page here!!! YAY!
This is the disease-resources home page. I hope you find very valuable information here!
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